In case you haven’t noticed, I am trying to be more stealth with using B-man’s real name (and face!) these days. I’m not quite used to this, as it feels really awkward, kind of like “Hi I’m Jenny but people call me J-Wow” awkward. I promise, I have at least a few good reasons for […]Read more "I changed the name of my blog and this is why you should care"
I was recently published again on Sammiches and Psych Meds…. Please check it out: I Accidently Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile SonRead more "I Accidentally Hired an Anti-Vaccine Zealot to Care for My Medically-Fragile Son"
The dad swoops in, whisking his son away from the playground. “We’d better get going!” Moments earlier, my then 2-year-old son had mustered up a weak “hello” for the boy after sticking his tongue out for a solid 30 seconds. It was his typical greeting at the time. My son’s voice is still weak from […]Read more "Parent of One-in-a-Billion Boy Seeks Same"
The rap sheet for all the stuff that’s happened to my son’s body is beginning to sound fictitious: multiple fractured femurs, pneumonia, lung failure, rodding surgeries, and more. My husband and I have spent an extraordinary amount of time in the hospital with him. While most people would rather experience a rapid succession of mouthburn […]Read more "Top 5 Reasons Why I’m Super-Excited to Spend the Holidays in the Hospital"
As a self-certified, part-time, mama blogger, I read all the stuff. I’m borderline obsessive with reading every single tiny thing out there that might have anything to do with children, or more specifically, rare genetic diseases. I may have even reached out to you (yes, you!) over the past year. And you probably ignored me. […]Read more "The One Sentence Parents Need to Stop Saying"
It seems as if everyone is a doctor these days. Thank you, internet! I am not a doctor. I haven’t even made it to season 4 of Grey’s Anatomy (yet). However, I have a son who attracts lots of attention from amateur doctors, people who think they know a thing or two about medical science. […]Read more "Everyone’s A Doctor: The Best of the Worst Medical Advice We’ve Received"
… Please! Thanks. Why I Don’t Fear For My Disabled SonRead more "Check out my story on The Mid…"